MS Ireland
Informing, Supporting and Caring for the MS Community
MS Ireland helps researchers with their projects by offering advice, data and access to our MS community. We encourage people with MS to get involved in research that is ethical, appropriately organised by a recognised institution and sanctioned by that research authority.
The projects listed here are for information purposes only. If you choose to get involved in any project you do so at your own discretion. Please read the information provided carefully and make contact with the individual researchers if you have questions
Check out our health professionals section for news and more information.
If you would like help with your research, contact Aoife Kirwan on aoifek@ms-society.ie or call (01) 6781600.
Watch talks from Professor Gavin Giovanonni; Dr. Jens Bansi; Dr. Kate O Brien, Genomics Medicine Ireland; Dr. Sabina Brennan.
A brief overview of the fascinating history of Multiple Sclerosis, from the first known case dating back to the 14th century
Living with a neurological condition in Ireland The Neurological Alliance of Ireland have launched their latest research on 'Living with neurological condition in Ireland'. The findings from their survey, based on responses from over 600 individuals with neurological conditions and family carers, highlight a “cascade of challenges” from long waiting times to get a diagnosis, struggling to access ongoing care and dealing with the impact of their condition on work, financial wellbeing and family relationships. Download the full survey report from NAI's website
Research Request What is Parental self-efficacy? Parental self-efficacy describes the beliefs one has of their ability to manage and perform the role of parenting successfully. Who is carrying out this study? Rachel Mc Laughlin is a 4th-year Occupational Therapy student in NUI Galway. This research is being completed with a final year university project. This study will run between January and April, 2019. Aim of study Your participation in this study will add to knowledge on how MS can affect parents, specifically through levels of fatigue and parental self-efficacy. It is hoped that this information will lead to an improvement in health services in the future. Who can participate A parent with MS with a child/children between 2-18 years old? If you are interested in participating in a study looking at the impact of fatigue on parenting please read the information sheet to find out more about this study and if you are eligible to participate Get in touch Contact the researcher at r.mclaughlin5@nuigalway.ie who will happily answer any questions that you may have.
Research Request We have been approached by a postgraduate student of psychology at Trinity College who is researching whether young people aged 14 -18 years who live with chronic pain have different worries and beliefs about worry, from their counterparts who do not live with chronic pain. Aim of study This study is the first step in understanding beliefs about pain and about worry in a sample of adolescents, who experience chronic pain, and to compare and contrast this with a sample of adolescents who do not experience pain. Get in touch If this is a study you would like to take part in, please email Aoife aoifek@ms-society.ie
MS Reseach Ball We are excited to announce that our Kiss Goodbye to MS Research Ball will take place on Saturday, 25th May So save the date – we will be announcing more details soon, including a one day only Valentine’s Early Bird Ticket offer. Let’s make 2019 bigger and better! Last year our MS Research Ball was a great success, raising over €15,000 that went directly to fund vital research into the causes, treatments and possible cures for MS. It was a night to remember! We enjoyed a prosecco drinks reception, scrumptious 4 course dinner and live music by The Luna Boys. We danced, sang and laughed into the wee hours!!
A Health Research Board funded study called ‘Patients’ Preferences for Health’ are looking for volunteers You are invited to participate in a study which will explore “Patients’ Preferences for Health”. In general, people have preferences of being in one state of health over another. This can often be a preference to have good health over bad, or to be in good health for so long and to be in less well health for a shorter period of time. By asking the public in Ireland to make these decisions or trade-offs we can say something about the general preferences of people in Ireland. Preferences gathered in this way are often used to guide choices around decisions in relation to health and using preferences from the general public is deemed to be a fair way of deciding on how to assign healthcare resources. However, it is likely that a person’s experience of being in a health state will alter their preferences compared against those who are only imagining being in that state. As such, this work will examine the differences between patients with Multiple Sclerosis (MS) valuations of health states, and those of the general population to see if this is actually the case. Before you decide whether you would like to be part of this research study, it is important that you understand why we are carrying out this research and what it will involve. Download participant information Get in touch If you are interested in helping with this study, please contact Dr. Stephen Erskine at erskines@tcd.ie originally published October 2018
Join our MS Squad for the Vhi Women's Mini Marathon on June 2nd and help us raise essential funds for our support services across Ireland. Sign up early to make sure you’re in!
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