MS Ireland
Informing, Supporting and Caring for the MS Community
MS Ireland helps researchers with their projects by offering advice, data and access to our MS community. We encourage people with MS to get involved in research that is ethical, appropriately organised by a recognised institution and sanctioned by that research authority.
The projects listed here are for information purposes only. If you choose to get involved in any project you do so at your own discretion. Please read the information provided carefully and make contact with the individual researchers if you have questions
Check out our health professionals section for news and more information.
If you would like help with your research, contact Aoife Kirwan on aoifek@ms-society.ie or call (01) 6781600.
Watch talks from Professor Gavin Giovanonni; Dr. Jens Bansi; Dr. Kate O Brien, Genomics Medicine Ireland; Dr. Sabina Brennan.
A brief overview of the fascinating history of Multiple Sclerosis, from the first known case dating back to the 14th century
A Health Research Board funded study called ‘Patients’ Preferences for Health’ are looking for volunteers You are invited to participate in a study which will explore “Patients’ Preferences for Health”. In general, people have preferences of being in one state of health over another. This can often be a preference to have good health over bad, or to be in good health for so long and to be in less well health for a shorter period of time. By asking the public in Ireland to make these decisions or trade-offs we can say something about the general preferences of people in Ireland. Preferences gathered in this way are often used to guide choices around decisions in relation to health and using preferences from the general public is deemed to be a fair way of deciding on how to assign healthcare resources. However, it is likely that a person’s experience of being in a health state will alter their preferences compared against those who are only imagining being in that state. As such, this work will examine the differences between patients with Multiple Sclerosis (MS) valuations of health states, and those of the general population to see if this is actually the case. Before you decide whether you would like to be part of this research study, it is important that you understand why we are carrying out this research and what it will involve. Download participant information Get in touch If you are interested in helping with this study, please contact Dr. Stephen Erskine at erskines@tcd.ie originally published October 2018
Volunteers Required The MS Team at University of Limerick (UL) are looking for the 'first' volunteers to test their Activity Matters in MS web-based intervention. The 12 week programme will guide you through choosing the right activity, getting started and keeping exercising. The website has been developed using the latest research, theory and importantly the views of people with Multiple Sclerosis. To find out more please visit https://www.msresearch.ie/activity-matters Get in touch If you would like to take part please contact susan.coote@ul.ie
Online questionnaire Fintan Murphy (MSc Physiotherapy) along with Professor Susan Coote (School of Allied Health) of the University of Limerick are inviting you to take part in an online questionnaire examining physical activity behaviour in people with Multiple Sclerosis. This is an international project in collaboration with researchers in the USA and in Germany. Who can participate? People with a diagnosis of MS and aged 18 years or older can participate in this study. We are inviting people with MS who “fit into” all levels of physical activity to take part. So, you do not have to be a physically active person to take part in this study. Aim of research study: The aim of the research is to understand the factors associated with physical activity so that future studies can design and appropriate exercise programmes for people with MS. What do I have to do? If you decide to take part you will complete an online questionnaire consisting of 63 questions. The questionnaire will take 40 minutes (approx) and you can complete it over one or two sittings if desired. Click on the link below for more information and to start the survey
Research participants needed! The Centre for Pain Research at NUI Galway, with support from MS Ireland, invite you to take part in a research project which will investigate the effects of an online mindfulness-based intervention that has been designed for people living with primary or secondary progressive Multiple Sclerosis (MS). You are eligible to take part in the study if... You are aged 18 years or over; You have been diagnosed with either primary-progressive multiple sclerosis (PPMS) or secondary-progressive multiple sclerosis (SPMS); You are not currently undergoing any form of psychological treatment; You are not currently experiencing any psychological illness or cognitive impairment; You are not currently undergoing any mindfulness-based therapy; You can provide informed consent; You have regular access to a computer and to the internet; You are fluent in the English language Before you decide whether you would like to be part of this research project, it is important that you understand why we are carrying out this research and what it will involve. Download participant information Get in touch If you are interested in taking part, please email: painresearch@nuigalway.ie or telephone (091 495391). Please also visit the Centre for Pain Research’s website
Issue 5 is out now! MS Research is a bi-annual research eZine. In each edition we will be sharing the latest updates from scientific and social MS research, from here in Ireland and internationally. In this issue Research event reports Stem cells Vitamin D Registries Dean Medal Kiss Goodbye to MS Research Ball Mindfulness International Progressive MS Alliance And so much more….
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