Blog Articles, tagged with: Ms

MS Registry in Ireland

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Briefing Document and Position Paper on the need for an MS registry in Ireland MS Ireland has produced a Briefing Document and Position Paper on the need to establish an MS Patient Registry in Ireland. The paper outlines: What patient registries are Why registries are important ...

Published by MS Ireland on Monday October 23 2017 09:23 AM

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Live Stream

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We are live streaming talks from our 'Living Well with MS' Conference in Sligo this Saturday, September 23rd. You can join us on the day from anywhere around the world... We are delighted to welcome our guest speakers: Dr. Orla Gray, Neurologist, Queens Hospital, Belfast @ 10am Dr. Deirdre Cor...

Published by MS Ireland on Wednesday September 20 2017 02:05 PM

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Survey: Disease Modifying Therapies

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Suvey Closed on Tuesday, 2nd October 2017 What is important to people with MS regarding treatment options MS Ireland is conducting a short, anonymous survey about disease modifying therapies (DMTs). This survey is open to anyone with a diagnosis of MS or Clinically Isolated Syndrome. You do not...

Published by MS Ireland on Tuesday September 12 2017 06:49 PM

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Update: IPHA Framework Agreement

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Continual delays in reimbursement of new medications One year ago, the Irish Pharmaceutical Healthcare Association (IPHA) made a Framework Agreement with the Irish government on the pricing and supply of medicines. The agreement had two purposes (1) to save money and (2) to have timely acce...

Published by MS Ireland on Thursday July 20 2017 12:14 PM

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National Conference 2017

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Book your place now MS Ireland will host the annual MS National Conference on Saturday, 23rd September in the Radisson Blu Hotel, Sligo. The theme of this year’s conference is 'Quality of Life' Highlights of the day include: Dr. Orla Gray, Neurologist, Queens Hospital, Be...

Published by MS Ireland on Wednesday July 19 2017 09:45 AM

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MS Ireland Values

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Survey is now closed Identifying the values that will guide MS Ireland in turning our mission and vision into a reality MS Ireland Mission 'To enable and empower people affected by Multiple Sclerosis to live the life of their choice to their fullest potential' MS Ireland Values An organisati...

Published by MS Ireland on Monday July 10 2017 09:56 AM

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Membership

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Resigning as a Member of MS Ireland Dear Members, Following a recent ring around to members regarding accessing the financial statements on the website, some members said that they wished to be removed from Membership.   Should you wish to resign as a member of MS Ireland, please write to...

Published by MS Ireland on Thursday June 29 2017 11:01 AM

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Cladribine Update

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Cladribine Tablets receives positive CHMP opinion for treatment of relapsing forms of MS Efficacy and safety data support positive benefit/risk assessment from CHMP  Cladribine Tablets is the first and only investigational medicinal product to have shown a sustained 4 years of di...

Published by MS Ireland on Monday June 26 2017 10:45 AM

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Caroline's Story

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Hello, my name is Caroline Brennan and I was diagnosed with MS in May 2014. I experienced prolonged symptoms both before and after my diagnosis and got no relief from disease modifying drugs- just a selection of side-effects. As crazy as this may sound, I now count my diagnosis as one of the gre...

Published by Caroline Brennan on Wednesday June 21 2017 12:12 PM

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Launch of Quality of Life Report

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Quality of life for people with Multiple Sclerosis (MS) reported as being one third lower than the general population[i] To mark World MS Day on 31st May, 2017, MS Ireland and Novartis have released research on the quality of life of people living with Multiple Sclerosis (MS) in Ireland. The res...

Published by MS Ireland on Wednesday May 31 2017 12:10 PM

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