« Back

UPDATE: Fampyra

Fitted

Thursday October 01 2015 01:58 PM

Fampyra to be reimbursed for people with MS on a responder basis

Multiple Sclerosis Ireland welcomes the news that that the HSE will reimburse Fampyra or Fampridine in cases where people with MS ‘satisfy a responder protocol’ and have been prescribed the drug by a healthcare professional. Fampyra, an oral drug used for the symptomatic treatment of walking impairment in adults with MS will be available under the HSE General Medical Services (GMS) Scheme from today, October 1st 2015.   

Since July 1st 2014, Fampyra has only been available to people with MS at a personal cost of between €200 and €500 per month, a cost which is prohibitive to most of those who had been receiving the drug for free on a ‘named patient’ basis up until that point. For those who had been receiving Fampyra for free up until July 2014, they found that the drug had a significant impact on their ability to remain independent, as it has been shown to have clear benefits in improving the mobility of those with MS. Forced to live without the drug, for even a short period of time, patients who had been taking Fampyra found their ability to complete even the simplest of tasks severely restricted.

On September 2nd 2015, the HSE confirmed that it was ‘in the final stages of putting in place the governance arrangements and processes around a responder based reimbursement programme for Fampridine.’

Ava Battles, Chief Executive, MS Ireland welcomed the news today that the HSE will reimburse Fampyra on a responder basis, “We are delighted that Fampyra will now be accessible for people with MS who have been prescribed this drug by their neurologist. MS Ireland has been working with people with MS, calling for access to this approved treatment on behalf of our members as it has shown increased mobility and allowed a quality of life that has previously been denied them due to the debilitating nature of this condition.” 

MS Ireland would like to thank all those who have campaigned tirelessly for reimbursement for Fampyra since July 2014. In the recently launched guide to accessing MS medicines in Ireland, the ‘Access to Medicines’ Campaign Handbook, two of the case studies included focus on individuals struggling to self-fund Fampyra. MS Ireland is delighted with this positive outcome for those individuals and for all those who will now be able to continue or resume their treatment. 

Further reading

Author: MS Ireland

Tags: fampyra, fampridine, ms, multiplesclerosis, neurologist, hse, treatment

Comments

Theresa Mooney

Thursday October 01 2015 15:29

GREAT NEWS SOOO HAPPY

Joan Jordan

Thursday October 01 2015 16:44

Yahoo! Great news! Well done MS Ireland on the Access to Medicines campaign.

Declan Smith

Friday October 16 2015 14:37

Great News but nobody seems to be able to tell me what is the next step. does this mean that I have to pay for the drugs myself for 6 months and then get reimbursed if I show improvement at that stage?
I have no doubt that I will improve as I have previously improved during a months trial. but this is a significant outlay. Am I correct ?

Hi Declan,

You really need to speak with your MS Nurse or neurologist to find out what system is in place at the hospital you attend.

christine

Friday October 16 2015 15:21

I do not have a neurologist so how would I get this prescribed? Can my dr prescribe? Living in Ireland 17 years and still no neurologist. If I need emergency treatment I have to go a and e

Add a comment

Your email address will not be published and will only be used by MS Ireland to contact you should there be an issue with your comment.

Please read our policy on making comments. Basically, respect other people’s view, use appropriate language and be nice! Comments are published between 9am and 5pm, Monday to Friday.

We ask this question to ensure that you are a real person, and not a computer adding information automatically.

By commenting, you are adhering to our Terms of use / Privacy

Latest News

More news

What's hot

Small_camera-photographer-yellow-photography

Enter our 2020 Calendar Competition!

Calling all budding photographers! Enter our competition to see YOUR photo in our new calendar!

Find out more

Events Calendar

» Our next Event

21 June 2019: Open coffee morning and information on MS and the Clare Branch, everybody welcome.

View all events

eNEWS SIGNUP

If you'd like to receive e-news updates from The Society please enter your email address below. If you want to know more about how we manage personal data then please see our privacy policy.

My local MSI

Map of MS Ireland's service areas South Mid West West Midlands South East North East North West North Dublin City and Fingal South West Dublin and Kildare South East Dublin and Wicklow