Monday October 23 2017 09:23 AM
Briefing Document and Position Paper on the need for an MS registry in Ireland
MS Ireland has produced a Briefing Document and Position Paper on the need to establish an MS Patient Registry in Ireland.
The paper outlines:
- What patient registries are
- Why registries are important
- Current patient registries in Ireland
- MS registries internationally
- MS Ireland’s position and recommendations
The paper can be accessed here
This document has been prepared by Harriet Doig, Information, Advocacy & Research Officer, MS Ireland. Questions and comments can be directed to harrietd@ms-society.ie
Comments
Pat Condon
Friday November 03 2017 15:57
Any registry brought together would have to ensure security for Patients who have identified themselves against possible lay off from their employments. This is a very real danger for People with MS especially with the liability for falls in the workplace. What I am saying clearly is that the registry can only be beneficial if there is a maximum disclosure by People. People who have been diagnosed with the illness will need some assurances to protect themselves as best they can.